This was a scoping review of the experiences of people with inherited cardiac conditions and congenital heart disease and their families. The Irish Heart Foundation is trying to investigate the issues which these individuals and their families might face throughout the life course. It is hoped that this scoping review will highlight current knowledge, inform potential future studies and also inform the supports provided by the IHF to people with inherited cardiac conditions and their families.

There is virtually no Irish research on inherited cardiac conditions and congenital heart disease and the literature on inherited cardiac conditions is in general limited. Many areas of interest in relation to the social consequences, psychological experiences and quality of life associated with inherited cardiac conditions could not be addressed by this review as they simply have not yet been addressed in the literature itself. These knowledge gaps highlight the need for further research in this area.